Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM.
This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life.
Showing posts with label Prayer Flare. Show all posts
Showing posts with label Prayer Flare. Show all posts
Wednesday, September 28, 2011
Permanent Maddie Bracelet
Here is my second (and hopefully last) tattoo. the heart is inspired by the heart shape in her ear. The script is inspired by the "maddie" signs my brother made to decorate her isolette at the hospital. At some point, I think it will get the entire tattoo shaded in a pale pink or a lavender, but for now, i'm just going to get use to looking at it every day and remembering my girl.
Thursday, March 24, 2011
Madelyn Bracelet
![]() |
| Gender Neutral or Male Bracelet |
Monica asked if there is an organization that we would like her to donate money to and I requested Project Sweet Peas. Already this organization has been a huge support to me - I've befriended a mom named Stephanie, whose 3 year old, is a CDH survivor. When the time is right, Stephanie has promised me a Sweet Peas Care Package, full of wonderful goodies to help us in our NICU stay.
![]() |
| The bracelet Mom, Jamie, Therese and I are wearing |
Rowdy Wear
Sunday, March 13, 2011
The Madelyn Bracelet
Baby J now officially has a name - Madelyn. no middle name yet. We have it narrowed down to a few, but we have plenty of time to decide.
Here is the link to buy your official unofficial Madelyn bracelet.
Madelyn Bracelet

The artist who is making them has graciously agreed to make them at cost plus shipping. Although we did not know her a week ago, her gracious encouragement and support speak volumes about her heart.
The bracelets will look similar to the one pictured here, but will include pink strands of leather (in some gender neutral kind of way).
Whether you chose to wear this bracelet, a different one or none at all, we hope you'll continue to lift Maddie up in prayer regularly. She (along with her family) has a tough fight in front of her. I have faith in God's power to protect her and for His will to be done. And I have faith that at least some of my stubborn genes will be passed onto her so she is ready for this fight when it comes.
Thursday, March 3, 2011
Wear Pink
We are so thankful for all of the support and prayers we've already received on behalf of Baby J.
We'd like to ask you to wear or carry something baby girl pink with you on Monday while we are undergoing testing and consults. When you notice your piece of pink flare, please take a second to lift Baby J up in prayer. Even if 5 people do this and notice their flare 20 times, that's a lot of prayer for this little girl and her health.
We'd love to see pictures of you with your flare too. Again, your love and support and prayers are really helping us get through day to day while we wait right now. And the waiting is the hardest part.
Subscribe to:
Posts (Atom)



