Why don't you stop???
Blogging, emailing, facebooking and talking about Maddie and CDH as much as I have, I've had to ask myself why? I'm sure that I'm already annoying some people with the constant barrage of messages and we still have years to go in this fight. Didn't I just talk about pacing myself?
So there are a couple of reasons I won't stop, at least not as long as I have something to say and the energy to say it.
- It feels healthy. Just like getting dressed every morning and continuing to work and playing at the beach with Luke and Dillan, it just feels right.
- It may help another CDH family. Lets face it, anyone blogging about an illness is not only looking for answers, but also understanding and acceptance.
- Selfish reasons. I spend my time writing about it online because it is almost impossible for me to talk about face to face. I really love talking to people who are keeping up with this blog because I do not have to backtrack and explain things. Nor do I have to try to gracefully end the conversation if I can't handle it at that moment.
- The most important reason, because my family needs pray and support right now and for an indefinite amount of time. And this is the best I know how to ask for it.
Hello! I am also due at the end of this month with a baby boy with LCDH. I will add your blog to the list on my site. Please feel free to check it out as well: www.ourcdhstory.blogspot.com
ReplyDeleteI completely agree that blogging about it JUST MAKES ME FEEL BETTER!!! Wishing you a smooth pregnancy,
Janna Caravia
Due with LCDH Baby Boy 4/26/11
I can relate to this post. I spread the word about my son's CDH like wildfire....and it was all for him. I believe doing so is what helped his fight... the more prayers the better! I will be praying for your family!! Feel free to contact me if you need anything!
ReplyDeleteLisa Razza
Mom to Ramsey, born 1-12-11
rootingforramsey.blogspot.com
razzas@verizon.net
I think your blog is wonderful and what you're doing is amazing!!! Reaching out to help others while just starting on the CDH journey yourself is truly selfless and inspirational. We're so sorry you're dealing with CDH but so glad you found us and are part of our CHERUBS family now. Whatever you need, we're here. You're definitely not alone - 3600 CDH families are here for you!
ReplyDeleteDawn