Congential Diaphragmatic Hernia (CDH) Awareness Day
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| Baby Maddie at 22 weeks |
Thursday March 31st is Congential Diaphragmatic Hernia (CDH) Awareness Day. Please wear Pink (Maddie's color) or turquiose (the official CDH color) and share Baby Maddie's story with one other person.
Madelyn Spence was diagnoised with CDH at 21 weeks of gestation. She currently has an expected survival rate of 90% if no other complications arise. She is due July 13, 2011.
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CDH is a serious birth defect affecting 1 in 2500 live births. A large hole in the diaphram allows the stomach, liver, bowels or other organs to develop in the chest cavity, limiting the development of the lung, heart and digestive systems of the fetus.
Overall survival rate with CDH is 60%. Long term complications for survivors include deafness, learning disablilities, scoliosis, digestive problems, heart failure, asthma and even death. Life expectanty is unknown as CDH treatment is just reaching a point where survivors are routinely making it past childhood.
Our prayer for this week is that we can share Maddie's story of survival one year from now when we again invite you to participate in CDH awareness day.
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