Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM.
This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life.
I just started a grief support group for CDH parents on facebook. Its a secret group (invite only). Please let me know if you want an invite or if you want to be an admin and invite others to join.
I would love to be in the group! My name is Megan Skaggs on FB, thanks!
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