CDH Recommended Reading List

Just wanted to share some of what I've been reading as we get ready for Maddie's arrival next week. 


Journal of Pediatric Surgery  - just search for CDH.  Only the abstracts are available for free but they provide enough detail to start a conversation with your doctor.

Your Child in the Hospital by  Nancy Keene and Rachel Prentice.  Excellent book to help plan the nuts and bolts of a long term hospital stay.

Why Mine? A Book for Parents Whose Child is Seriously Ill.  A short pamphlet that helps think through and deal with some of the emotional stress of having a sick baby.

Everything on the CHERUBS web site. 

Other CDH blogs, especially where the CDH baby is still a baby. 


For Siblings:

When Molly was in the Hospital. By Debbie Duncan
What about me? When Brothers and Sisters get sick. by Allan Peterkin
Curious George Goes to the Hospital