Woke up to a great email from an amazing lady. Maddie's 1 month birthday started extra early this morning when Christina and her 4 kids baked a ton of Pink cupcakes and brought them in to her husband's o-room to share with his company. They even shared with their CPRC cadet from USMA. They live in Korea, so this is truly an international celebration already.
Dillan and I plan on getting dressed and going to a local bakery to pick up some pink cupcakes later this morning.
It's your turn - go out and eat some pink cake. Share with a stranger and raise awareness for Maddie and CDH.
In addition to turning 1 month old, Maddie will either be extubated or start receiving food today. These are two huge milestones that we have to conquer before we can even start going home. Both come with a lot of risk, including complications with her existing Chylothorax (chest fluid) condition.
Dillan is settling in great at the Ronald McDonald house. Luke spends the mornings with Maddie while I play with Dillan then we switch off during nap time. Dillan loves the play room here and that we get to take a bus, train or shuttle everywhere we go.
Special Hello to one of our new blog followers - Sue! Sue is Maddie's favorite nurse and has been an amazing support and resource for all of us. She's a huge reason Maddie is doing as well as she is and the only reason we've been able to hold her despite all of the tubes and wires.
Ok - stop playing online and go eat some pink cake!
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