Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM.
This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life.
Thursday, August 4, 2011
Maddie had a good day yesterday. She looked great and tolerated all the activity in a hectic room very well. The plan over the next few days is to move her to less pressure on her ventilator and extubate her on Friday. They weaned the pressure on her ventilator to the lowest it has ever been, and she seems to be tolerating it pretty well. She has been a bit cranky this morning, but it seems like normal newborn fits, and we've been able to calm her down by patting her butt and rubbing her head (as opposed to giving her a sedative). We're looking forward to the day when we can swaddle her up and rock her to sleep. We also might start feeding her on Friday. These would be big steps, so please pray that she's ready!
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